Master Muscle Marathon
Dystrophy Annihilation Research Trust is a parent-founded and funded research organization, who are conducting their first annual awareness and fund raising Marathon event called “Master Muscle Marathon” to support research on MUSCULAR DYSTROPHY. Everyone is encouraged to participate to support the cause, also with special invites going out to “Person with Disabilities” such as successful Paralympic athletes, Blade runners, and children from special schools. You can Walk, Run, Stroll or Roll with your family as well as with your pets, what is important is participation. Muscular Dystrophy Kids need our support.
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MD doesn’t affect speech, language, vision, hearing, feeding and swallowing.
Most children have a fairly normal intelligence although some may experience learning difficulties.
Children with MD can and should be encouraged to go to school and learn as long as possible.
If a pediatrician suspects that a child may have Muscular Dystrophy (MD), they will likely begin by testing the Creatine Kinase (CK) level in the blood. This muscle enzyme is very high in children with MD.
Although it is possible to screen newborns for MD by testing their level of creatine kinase, it is not routinely done. One of the big problems is that only about 10% of newborns with a high CK level will actually have MD. The other 90 percent will have CK levels that return to normal when they are a few weeks old.
Dystrophy Annihilation Research Trust [DART] is the first Research lab in India focusing on Duchenne Muscular Dystrophy (DMD). We are a parent founded and funded organisation working towards achieving a realistic treatment option to alleviate and reverse the dystrophy condition at the genetic level thereby enhancing the quality of life of affected children.
DART was founded by RS Anand who has been tirelessly working towards a deeper understanding of MD since discovering his son was affected by DMD in 2003. With India having more than 500 thousand boys with DMD it was startling that no proper research was being done for the same.